Humanism in the time of metrics—an essay by David Loxterkamp
BMJ 2013; 347 doi: https://doi.org/10.1136/bmj.f5539 (Published 19 September 2013) Cite this as: BMJ 2013;347:f5539
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I saw this paper by someone whose work I was not familiar with. Not so now. Both he and the BMJ are to be congratulated for this essay. It is truly outstanding in its breadth and lucidity. It makes for shocking reading about how good practice has been undermined. I say this as a patient, a consumer in primary care, aware also of how this wonderful service was championed by its early developers.
Its not all that complicated. We patients are people, and we like things being done with us, on our behalf, not just to or on us. Lose this little truth and you tear the heart out of the system. I can promise you that this is not wooly “psychobabble”. I leave it to others to highlight the dysfunctional practice out there, usually delivered by really good people. This essay deserves widespread exposure. That it mentions some of my work is almost irrelevant. If the underlying system has dysfunctional elements, we need to change it.
Competing interests: I am a co-author of books on a subject referred to in this paper.
From through the leaves of the acacias there radiates a drone of propeller sound. The de Havilland flies low over a scrub which is barbed with the thin-barked trees. A man stirs to the sound. Around him the recession of the night has been replaced by a daubing of the African sky with first light. He sits alone by a desolate field in the weight of the morning. His field has threadbared into a welter of sunburnt grass and entropies of scrawny flower. Momentarily, his face is quickened by the metal bird which silhouettes into the dawn, as he hears the insistence of its burring motors over the calm of a millennium. Sight dimmed by cataracts, starved of light, the man has survived because of his indomitable woman. Out in the hinterlands of Africa, his continuance will be through his children, and in them the circle of life has already begun swerving its first arc. His smooths the earth with his hand and, through the velvet of blindness, sees the scrub which wreaths over a soil once emblazoned with spears of lush maize. The farmer wants to work his land again. He has been waiting for this plane. The eye surgeons have arrived. He will work his land again.
Without the accoutrements of a developed country, the visiting team will perform surgery to restore sight, and the gratitude of a host surgeon will remain vivid through correspondence filtering across a concertina of years. The surgeons will know their patients only by the smallest of measures, but their satisfaction from the care will be of the largest measure. Without any fluencies of dialogue between patients and surgeons, “goodwill and gratitude” will miraculously recipe into the utmost humanism. Expressed to its greatest degrees is humanism in a rural Africa which is bereft of clever systems or technology. The timorous faces of African patients contrast with the expressions of malevolence observed by a tired surgeon as he catches the bus home on his return to the developed world. Economically privileged areas can seem the most dehumanised and spiritually derelict locations of the world.
As a family physician, Dr Loxterkamp from America considers the threat to humanistic care when the time of doctors is largely spent rectifying numerical indices, as obeisance to national frameworks for population health. My colleague cites the box-filling by which he is enslaved when his patients are riddled with prosaic predicaments, such as marital discord, and for which they most require his support in the confines of a consultation. He mentions serum cholesterol as one index amongst the staples of family medicine which monopolise his limited energies. Of special poignancy is his remark that today a doctor may converse with a computer in place of detecting useful revelations on the face of a patient. My colleague verbalises his feeling of dehumanisation in the unfathomably complex technoscapes of contemporary medicine.
The clinical workplace which sinks Dr Loxterkamp into a fugue of dejection is itself emblematic of the society fermented over the last twenty years. Retrospectives on this time will show that this was a tempestuous nexus of change. Bewilderments of the present are sometimes better tolerated when juxtaposed against the yardstick of history : only years after the Wright brothers made frog-leaps on the flimsiest of flying contraptions there arose aerobatic machines which could fly armoured with repeating-guns into the commotions of the First World War. Those politico-technological developments over only a dozen years comprised a historical pattern of astounding amplitude.
Patterns from the recent course of history have similarly intensified over the last twenty years especially in the richest areas of the world. The first tides of population longevity have beaten forcibly against the walls of besieged health services. Coupled to these demographics and the advances in medicine, the superimposition of a digital revolution has redesigned the experience of being a human being -----and thus the functioning of society en masse. Money is apportioned by walled computers and in the supermarket the customer can enter aisles where another computer is found silently perched at the till. Technology has superficially brought connection, but ironically a deeper fragmentation of society, and a peculiar alienation of the individual within the articulacy of talking electrons.
Against these wider sociotechnical trends, “the potential for dehumanisation” is noteworthy within health systems, which necessarily must run under high levels of organisation. Systemisation, for instance, allows patients to attend a busy list so that the same drug is given to each person at the same dose. “Efficiency, efficiency, efficiency” is the slogan of such prideworthy services which engender sustainability in healthcare. However, though treatment can be systematised as a technical procedure, the reaction of a patient to the clinical episode cannot be standardised. Humanistic care for a patient is a dynamic response from the clinician which meets the individual reactions of a patient. Considerateness cannot be measured, electronically boxed, and tariffed by the spinning cogs of healthcare scrutiny and economics. Over the accelerating last decade, this point has underpinned the remonstrance of clinicians within the politically-charged arena of healthcare economics. Under the asphyxiations of intensified healthcare, my colleague from across the Atlantic asks for a concerted preservation of humanism in medicine. His exhortations make sense : experience shows us that humanism is resoundingly what patients most want from their doctors.
We must all better appreciate the dehumanising capacity of a world into which we are inescapably subsumed. Nowhere is this appreciation more apposite than within the high-flow systems rigged for physical and psychological healthcare. Patients and doctors both need sanctuary from the dehumanisations of a speeded-up and grossly technologised world. Patients unremittingly want humanised care. Physicians deserve a humanised environment, as expressed by my American colleague from his experience as a doctor in family medicine. Similarly, the finest surgeons are comparable to highly-strung racehorses. Thoroughbreds neurotically start, fright, twitch, and need to be humanistically becalmed so they can win the next race. Collective efforts to humanise environments – against the greatest common threat : that of dehumanisation in a complexly composite world – will improve psychophysical health locally and globally. Humanism is “the way of the union.”
Competing interests: No competing interests
HUMANOLOGY 1
A liar misinforms others
A fool misinforms himself
An honest man informs others
A wise man informs himself
HUMANOLOGY 2
Facts = feelings + data
Knowledge = explanation of facts
Wisdom = humane application of knowledge
Humanity = capacity for self-knowledge and choice
Competing interests: I have a self-published e-book called "Peace Poetry & The LOVE Diet", which promotes peace, simplifies health, and demystifies addiction.
Re: Humanism in the time of metrics—an essay by David Loxterkamp
Essay
Humanism in the time of metrics—an essay by David Loxterkamp
BMJ 2013; 347 doi: http://dx.doi.org/10.1136/bmj.f5539 (Published 19 September 2013)
Cite this as: BMJ 2013;347:f5539
True family physicians could applaud Dr. Loxterkamp's reiteration[1] of what makes family practice a unique healing discipline. What can it hurt to remind ourselves of what we believe in from time to time? This seems reasonably less painful and more nourishing than Thomas Jefferson’s call to perennially nourish our tree of liberty with the blood of freed men. While we may applaud the BMJ for publishing what they have allowed, something feels lost in the blandifying peer review process which sifted Dr. Loxterkamp's radically traditional creative vision into a somewhat milquetoast final loaf.
Dr. Loxtercamp outlines the abysmal average performance of some physicians but not the family care which I and my peers practice. Likewise free, simple, open source EMRs allow family physicians to practice the healing we teach our residents.[2] Contrary to the general criticism, such sensible EMRs ease documentation and proper coding, not upcoding, and they contribute nought to the high cost crime of North American medicine. To this day we know good doctors who care only for patients and do not give a d-mn about metrics.
Computers are simply abysmal at collecting data. Yes, they can store, sort, transmit and receive simple symbology, but too-often-ignorant programmers and their computer machines hack and cut short our richly symbolic qualitative human interactions with our patients. Furthermore physicians work far below our training level when dow our machines’ work by checking boxes. Should we return to a legible, organic,and creative written note when care is complex? Perhaps we should as paper was a better solution for many. We live in the Apple age of WYSIWYG so let us scan our scribed art from every large patient encounter into the magic EMR boxes we bow down to.
Only when our machines can record conversation, parse stories, and extract qualitative data for auto-indexing will we have EMRs without checkboxes and data fields. Only then will we free the many enslaved physicians who have been shanghaied into doing a machine's work of cataloging for their machines. The powerful EMR promise cannot be met by our stone age technology. PollyAnnish marketing aside, our technology remains inadequate to create EMRs that replace paper charting and perceptive chart reviewers.
The author recites old saws about the severe limits of outdated biomarkers and the real health benefits of prudent wholistic care. A medical science which must so repeatedly remind practitioners of our best evidence suggests that we do resemble Feinman’s cargo cult.[3] At the same time Dr. Michael Fine's rigorous analysis[4] of health in community is more persuasive than a reference to the popular writer Wendall Berry. In the end Dr. Loxtercamp suggests that physicians become what Family Practitioners have always been.
He also cites psychosocial health relationships commonly understood in the complex systems science literature.[5] A rigorous analysis suggests there is no “rule” of "three degrees of influence.”[6] We appear rather to swim in a more extensive influence of socio-cultural milieu which extinguishes with distance in a likely nonlinear way. By analyzing neither closer parental relationships nor network relationships beyond 3 degrees, the 3 degrees become an artifact of study limitations. Every scientific discipline benefits from more rigor and an awareness of complexity in the phenomena which we study.
Physicians may also benefit from not exagerating their effect size. We are observers more than the actors we may wish to be. Once we recognize our powerlessness we may still become catalysts for patients ready to make the effort to change through the motivational interview.[7] We prepare little and manage less of our patients' health travels, and we should take little credit when patients hit bottom and decide to change their walk towards healthier life.
In conclusion Dr. Loxterkamp encourages all healers again to join together in designing our future. YES, let us add qualitative data fields to hold the heart of our healing practice, but NO, EMRs cannot process that data towards supporting new research agendas. The same-old-as-always extensive human analysis is still required. YES, we re-affirm the heart of family practice, and NO, we will not earn as much or more in the process as Topol[8] suggests.
There exists this fundamental decision point which every healer must face between breathing the rich life of the village healer or counting our gold. The author cites olleagues who continue chasing the dragon of central power and wealth found as easily in modern Hollywood as ancient Babylon. Dr. Oz has made his choice but we all make our own.
YES, physicians have already retooled with computers if they chose wisely without the snake-oil cacophony of a thousand EMR vendors. NO, all fads do come and go as biomarkers also will. Sooner or later biomarkers will not be central to medical care if they affect not a whit of health outcomes. YES, our Dr. Oz-type televised talking heads are not educated in cutting edge classical medicine. NO, the answer is not so simple as a humanistic appeal to submerge our EMRs under our medical practice - and YES, we some of us have already done so.
[1] Loxterkamp, D. (2013). Humanism in the time of metrics--an essay by David Loxterkamp. BMJ, 347(sep19), f5539.
[2] Spikol, L. (2005). Purchasing an Affordable Electronic Health Record. Fam Pract Manag, 12(2)(Feb), f31.
[3] Feynman, R. P. (2005). Classic Feynman: All the Adventures of a Curious Character (Har/Com.). W. W. Norton.
[4] Fine, M., Peters, J. W., & Lawrence, R. S. (2007). The Nature of Health. Radcliffe Publishing.
[5] Sturmberg, J. P., McWhinney, I. R., & Martin, C. M. (2007). The Foundations of Primary Care.
[6] Christakis NA, Fowler JH. (2008). The collective dynamics of smoking in a large social network. N Engl J Med, 358,f2249.
[7] Satre, D., & Sterling, S. (2013). PS1-19: Impact of Motivational Interviewing to Reduce Alcohol Use Among Depression Patients. Clinical medicine & research, 11(3), 167, f1.
[8] Topol, E. (2012). The creative destruction of medicine: How the digital revolution will create better health care. New York: Basic Books.
Competing interests: Chief programmer and developer of the nonprofit 501(c)3 EMR project CottageMed, c. 1999-2013, which was the first free, open-source, and cross-platform (PC, Linux, Mac) EMR distributed worldwide.